RESEARCH PROGRAM

Januay 18, 2023

Community Engagement Digest

Research Funding Opportunity to expand use of All of Us data

NIH is set to award up to $4.75 million in 2023 for research grants to expand the use of All of Us data. The All of Us Research Program is working with 27 other institutes, centers, and offices across the National Institutes of Health to support new research on the All of Us Researcher Workbench. These grants, solicited through R03 and R21 funding opportunities, will help support analysis of the Researcher Workbench data using standard tools and methods, as well as the development and use of new tools or methods. Applications are due by March 1, 2023. Letters of Intent will be accepted until January 30, 2023.  For more information, click the below.

SPOTLIGHT

Position Recruiting

Supervisory Health Scientist Administrator
(Deputy Chief Data Officer)

The Office of Data and Analytics (ODA) at the All of Us Research Program in the Office of the Director, National Institutes of Health, is seeking motivated and qualified candidates for a Deputy Chief Data Officer (CDO) GS-15 position. The Deputy CDO will help oversee workstreams including strategy development, analytics capabilities, data governance, and data quality. The Deputy CDO shares responsibility with the CDO for the management of office programs and activities; oversees/directs the work of staff and fellows assigned to the office; and serves as a principal advisor to the office director in the fields of data science and analytics and their application to the All of Us Research Program.

Please apply to the Supervisory HSA job announcement links below. The announcement is open from January 18, 2023 – January 27, 2023. Please contact Andrea Ramirez, Chief Data Officer, at AOUODA@nih.gov for more information.

Health Scientist Administrator
(Branch Chief, Statistics and Data Science)

The Office of Data and Analytics (ODA) at the All of Us Research Program in the Office of the Director, National Institutes of Health, is seeking motivated and qualified candidates for a Branch Chief, Statistics and Data Science, GS-14 position. A strong background in statistical theory, computational skills, and experience in the analysis of high-dimensional data such as the electronic health record and/or genomics data is required. A doctoral degree or equivalent experience in statistics or biostatistics, or in a related field is preferred.

Please apply to the HSA job announcement links below. The announcement is open from January 18, 2023 – January 27, 2023. Please contact Andrea Ramirez, Chief Data Officer, at AOUODA@nih.gov for more information.

NEW All of Us Research Highlights

The All of Us?Research Program is shaping how we understand health and disease. The program’s Research Highlights showcases recent research powered by?All of Us?data and tools. Learn more about how the database was used to link birthplace and cancer risk among Hispanic participants and how researchers are using Fitbit data and Electronic Health Records.

All NEW Engagement Hub 3.0!
We are excited to announce the launch of the Engagement Hub 3.0! Here you will find program information, training, and other resources to support your work for the All of Us Research Program. We have expanded the navigation bar to include tabs on engagement resources, target markets, communications, and researcher engagement. Each subsection has tools and resources that can effectively assist you and your team.

If you don’t have access to the Engagement Hub, can’t find what you’re looking for, or have content suggestions, email Mrodriguez@pyxispartners.co.
If you need direct assistance with the Engagement Hub,
email ysimanovskaya@pyxispartners.co.

Research Spotlight

All of Us, By the Numbers
has been updated for January 2023!

Did you know that All of Us gained more than 2,400 registered researchers in 2022? There are now more than 3,930 registered researchers! Keep up with the latest researcher, institution, project, and publication numbers by visiting By the Numbers every month. Visit the site for this and other new and updated assets, such as new researcher testimonial videos.

Subscribe to Research Roundup
The new issue of Research Roundup is now LIVE! It features a lead story about the All of Us Researcher Ambassadors, new publications, and recent All of Us news. To receive the new issue directly to your inbox, subscribe to Research Roundup today.

All of Us Researcher
Ambassadors

The All of Us Researcher Ambassadors are tireless advocates for the All of Us Research Program. Each year, they participate in dozens of events that reach thousands of researchers interested in registering to use the Researcher Workbench. As registered users of the Workbench with an active workspace on the platform, Researcher Ambassadors share first-hand knowledge of this unprecedented collection of diverse data. Hear from four of the current ambassadors as they explore how access to the All of Us dataset can empower researchers and, ultimately, further health equity.

All of Us Researcher
Ambassador Network

The All of Us Researcher Ambassador Network is a community of diverse researchers engaging with their networks to share their insights and personal experiences using the All of Us Research Hub, Researcher Workbench, and dataset. If you are interested in having a Researcher Ambassador at your event or activity, please first read the SOP, then fill out a request!

Are you a registered researcher with active workspaces on the All of Us Researcher Workbench? If so, you are invited to submit proposals on your research using the program’s data. Submissions can be on any topic. Both in-progress research projects and previously published pieces are eligible. The convention, from March 29 to 31, 2023, allows researchers to showcase their work with others who share their passion for advancing precision medicine. Last year, more than 900 people attended. Twelve researchers will be selected to present at the 2023 All of Us Researchers Convention. We appreciate your support in promoting this event within your networks; use the promotional toolkit below.

All of Us Health-related DNA Return of Results Training

The National Alliance for Hispanic Health, in collaboration with COLOR, will be hosting two training sessions in English and Spanish, for frontline staff on All of Us Health-related DNA Results and Genetic Counseling Resource Services. The trainings will include information on how participants can receive health-related DNA results; the services and value genetic counselors can bring for participants, their health care providers, and other partners within the consortium; and how those groups can access free, accessible genetic counseling.
Click on the links below to join the sessions the day of:

• Friday, January 20th at 1pm EST (https://bit.ly/AoU_Genetics_E) – English
• Friday, January 27 at 2pm EST (https://bit.ly/AoU_Genetics_S) – Spanish

Recommended pre-reading materials before attending the sessions: Genomics Explainer Video, Health-Related DNA Results from the AoURP Fact Sheet, Health-Related Genetic Return of Results—Talking Points, and Clinical vs. Research Testing Flyer.

For more information, please contact Bryan Castro at bcastro@healthyamericas.org.

Embodying Grounded Personal and
Collective Racial Equity Consciousness

Register and join the NNLM All of Us Program Center (NAPC), in partnership with the University of Pittsburgh Center on Race and Social Problems and the All of Us Equity, Diversity, Inclusion and Accessibility Committee, for a series of in-depth conversations and learning opportunities focused on Racial Equity Consciousness from January 24th – March 7th. Each module in the series will engage staff through a referential and constructive framework to analyze the complexity and pervasiveness of racism, and reflect on what they can do, individually and collectively, to advance racial equity in their institutions and communities.

Rooted in Resilience is BACK!
Rooted in Resilience is a three-day event with three unique components: education with HBCUs, community, and faith partners. The tour is hosted by the Black Greek Letter Consortium (BGLC), which is made up of the nine National Pan-Hellenic Council (NPHC) organizations, also known as the Divine Nine (D9). We will celebrate the African American community’s collaboration in medical research, education, community empowerment, and spiritual enlightenment. Each three-day stop will highlight the achievements of the local community and feature musical, cultural, and educational activities. Save the Date for our 2023 calendar of tour stops and use the promotional toolkit below to spread the word.
  • Atlanta, GA (February 17-19, 2023)
  • Dallas, TX (March 10-12, 2023)
  • Winston-Salem, NC (April 14-16, 2023)

The All of Us Journey

The All of Us Journey Exhibit is back on the road and coming to a city near you. This Mobile Engagement Asset (MEA) features interactive stations designed to help visitors of all ages learn about bio-medical research and facilitate program enrollment.

The Journey will be back on the road in January and headed to the University of New Mexico from January 23 to 27, 2023. For more information on dates and times and to see where the Journey will travel next, visit the website. If you’re interested in hosting the Journey for an upcoming event, please complete the Request Form.

Embodying Grounded Personal and
Collective Racial Equity Consciousness

Register and join the NNLM All of Us Program Center (NAPC), in partnership with the University of Pittsburgh Center on Race and Social Problems and the All of Us Equity, Diversity, Inclusion and Accessibility Committee, for a series of in-depth conversations and learning opportunities focused on Racial Equity Consciousness from January 24th – March 7th. Each module in the series will engage staff through a referential and constructive framework to analyze the complexity and pervasiveness of racism, and reflect on what they can do, individually and collectively, to advance racial equity in their institutions and communities.

Rooted in Resilience is BACK!

Rooted in Resilience is a three-day event with three unique components: education with HBCUs, community, and faith partners. The tour is hosted by the Black Greek Letter Consortium (BGLC), which is made up of the nine National Pan-Hellenic Council (NPHC) organizations, also known as the Divine Nine (D9). We will celebrate the African American community’s collaboration in medical research, education, community empowerment, and spiritual enlightenment. Each three-day stop will highlight the achievements of the local community and feature musical, cultural, and educational activities. Save the Date for our 2023 calendar of tour stops and use the promotional toolkit below to spread the word.

  • Atlanta, GA (February 17-19, 2023)
  • Dallas, TX (March 10-12, 2023)
  • Winston-Salem, NC (April 14-16, 2023)

The All of Us Journey

The All of Us Journey Exhibit is back on the road and coming to a city near you. This Mobile Engagement Asset (MEA) features interactive stations designed to help visitors of all ages learn about bio-medical research and facilitate program enrollment.

The Journey will be back on the road in January and headed to the University of New Mexico from January 23 to 27, 2023. For more information on dates and times and to see where the Journey will travel next, visit the website. If you’re interested in hosting the Journey for an upcoming event, please complete the Request Form.

Community and Provider Gateway Initiative (CPGI) Corner
Happening TODAY!

The NIH All of Us Researcher Engagement team is holding an exciting opportunity to provide feedback directly during the “Expanding Access to All of Us Database” webinar Please join this special CPGI Virtual Listening Session today, January 18th at 2:00 p.m. EDT (Session should take 45 minutes). Register for the webinar here.

If you have any questions, please email Aleek Kahramanian at
aleek.kahramanian@nih.gov

CPGI Webinar and Additional Trainings
The CPGI webinar takes place on the secon Tuesday of every other month from 2:00 pm – 3:00 pm EDT. A calendar invitation including the link to access the webinar will be sent to CPGI partners and subawardees. Please contact your Engagement Counselor if you have any questions about participation or if you have not received the webinar link. Upcoming webinar dates:

+ February 14, 2023
+ April 11, 2023
+ June 13, 2023

Upcoming Target Market calls and meetings with community and program partners
(Some meetings may occur in-person and virtual [hybrid] to accommodate all participants)

Miami January 19 @ 10:00 a.m., EDT
California January 19 @ 10:00 a.m., PDT
Boston January 19 @ 4:00 p.m., EDT
Atlanta January 21 @ 12:00 p.m., EDT
Louisiana January 25 @ 12:00 p.m., CDT
Houston January 25 @ 3:00 p.m., CDT
Detroit January 26 @ 2:00 p.m., EDT
Additional calls will be scheduled over the next month.

All of Us in Social Media

Consider using these suggested content on your social media platforms. We also encourage you to follow and engage with All of Us on social media to share and amplify their messaging. Simply click on the links for each platform below and don’t forget to hit “LIKE”!
Note: If you post the following social media on an account focused on a target market, we suggest you use the corresponding URL:

• Contributing to @AllofUsResearch makes it possible for your community to be represented in health research! #JoinAllofUs at [INSERT URL FROM CTA FINDER] to help your community now and in the future.
• Without diverse data, researchers can’t consider the needs of everyone when developing treatments and prevention strategies. Contribute to the future of health research at [INSERT URL FROM CTA FINDER] #JoinAllofUs
• Genes are passed from parents to children and contain the information needed to determine physical and biological traits. When you #JoinAllofUs, the @AllofUsResearch Program gives you the opportunity to learn more about your unique traits and ancestry, like whether you have a gene that makes you sensitive to caffeine. Get started at [INSERT URL FROM CTA FINDER]
• Did you know many communities have been left out of health research in the past, which means we know less about how to keep those individuals healthy and help them when they get sick? By contributing your data when you #JoinAllofUs, you can help fill the gaps in knowledge so that better health solutions can be created for your community. Learn more at [INSERT URL FROM CTA FINDER]
• Participants in the @AllofUsResearch Program are from different races, ethnicities, age groups, and regions of the country. #JoinAllofUs to contribute to a health database that’s diverse in gender identity, sexual orientation, socioeconomic status, education, disability, and health status.
• Want to drive sustainable interventions that promote health equity? #JoinAllofUs to help fill the gaps in knowledge so that better health solutions can be created for your community.
A Look Ahead on Social Media
January is Cervical Health Awareness Month. This is a time to raise awareness of the 14,000 people in the United States who are diagnosed with invasive cervical cancer each year. It is vital to highlight that the disease is preventable with vaccination and appropriate screening and the need to continue research and improve treatment options. Throughout January, we encourage you to honor this observance by posting on social media. Consider using #CervicalCancerAwarenessMonth or #CervicalHealthMonth along with #JoinAllofUs or #ParticipaEnAllofUs in your posts.
Additional observances in January include:
  • National Blood Donor Awareness Month — #NationalBloodDonorMonth, #NBDM, #GiveBlood
  • National Glaucoma Awareness Month — #GlaucomaAwarenessMonth
  • Thyroid Awareness Month — #ThyroidAwarenessMonth

We want to spotlight and support your upcoming events and activities. Are you hosting a training or a webinar? Do you have an upcoming event or announcement you want to share with the program’s full engagement ecosystem? Please consider sharing content related to All of Us for the Digest! Email content to: yvelasquez@pyxispartners.co

The next deadline for content submission is Friday January 27, 2022

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